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WHY SICKLE CELL INITIATIVE: The sickle cell initiative encompasses organizations throughout the city including The Sicklr Cell Disease Association ofTarrang County, Texas Department of Health Services, John Peterd Smith Hospital, Texas Health Southwest Hospital, Texasw Health Fort Worth Hospital, Cook Children’s Medical Center, Plaza Medica l Center of Fort Worth and the Tarrant Countyu Public Health Department. All hospitalk systems are invitedto participate. The plan is to develoop an adult day clinic that would includs an adolescenttransition program.
We also want to developo city wide protocols for emergench rooms and inpatient facilities throughout Tarranft County to provide a consistent planof care. WHY LEAD THIS The citywide initiative came about after realizing that many of the adultt patients with sickle cell tend to cycle from one hospital tothe next. Treatment at each entityy is inconsistent and lengths of stay were often up to 30 The adults often cannot find primarhycare physicians, hematologists or pain specialista to help manage theirf condition.
The emergency rooms are the primar source of treatment for the The health care providers are often not familiar with sickle cell crisis and treatment is inconsistent from emergencg room to the next or one physician to the Our case manager at TexaxsHealth Southwest, Yvonne Blevins from Texas Health Fort Worthh and I decided to share the story of the adult struggles with representatives from John Petetr Smith Hospital and the Sickle Cell Disease Association. They were more than happhy to take part infurther discussions. The next meetinbg included representatives from the Publi c Health department andCook Children’s.
As word got out through localp articles, I had other organizations callinvg and expressing the same We started meeting in March 2009 to move towar d developing a business plan and seekintg funding for the day BIGGEST CHALLENGES: This project is still a work in The main challenge is trying to get peopl from different entities together for Everyone who is participating is in full support of the The next big challenge will be seeking funding for the clinic. We are completingy the business proposal and looking at all the variousx avenues available toobtain funding.
Monday, May 23, 2011
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